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Indigo Community
Investigating Digital Outcomes in a community setting for patients living with and beyond a diagnosis of cancer (IRAS: 324034
A multicentre, UK-based, observational study that aims to establish the feasibility of recruiting to a digital Patient Reported Outcomes Measures (PROMs) study via participant selfidentification or contact from the primary care research network. It also explores the feasibility of linking the participants PROMS responses to regional and national NHS data sets.
It is favourable to recruit GP practices at a federation or PCN level.
- Chief Investigator: Dr Matt Williams
- Study Sponsor: Imperial College, London
Patient participation
We can use questionnaires to help us understand how a patient feels about their quality of life (QOL) and experiences of care. These surveys are called Patient-Reported Outcome Measures (PROMS). PROMS have been used in research to understand patients' quality of life. However, more needs to be done to understand the quality of life for patients in the long-term following a diagnosis of cancer.
All patients over the age of 16 who have had any type of cancer in the past can take part. Patients will access the survey at a time that suits them using a digital link. They can complete the survey once or if they choose, a second time 12 months later.
Patient eligibility
Inclusion:
- Aged 16 years and above
- Diagnosis of any type of cancer in the past 12 months and beyond
- Participants who self-identify as having previously (time unlimited) received a diagnosis of cancer, based on histological, radiological, or clinical grounds (primary and/or metastatic cancer). Current treatment is not a barrier to participation, but the emphasis is on patients who have completed treatment.
Exclusion:
- Participants recently diagnosed with cancer (less than 12 months ago).
- Participants unable to access secure online platforms.
To express an interest in this study or find out information on other studies open to you, please contact us.